On Tuesday, July 8th-Evan had an MRI done to check on his enlarged ventricles to make sure we were not dealing with hydrocephalus again.
What a disaster of a day.
It is always a long day when we go to DUKE.
We were told to be there at 1130 for a noon MRI. We were not called back until 1230. Mind you....Evan must fast for this test. He had only a bottle of water at around 8am. His last bottle of formula was 8pm the night before. Needless to say he was a bit cranky.
They did not give him anesthesia until after 1. It was almost 2 when they took us into the MRI room...and guess what? Evan woke up and we had to leave the MRI room to try some different anesthesia. They said that they would have to give him an I.V. and that would be very difficult because of his size. They told us that he probably wasn't settling down because he was too hungry. (You think?) Anyways...they said we could reschedule, try the I.V. or feed him.
We opted to feed him and he did go to sleep...so we walked him back down the hall to the MRI room. Finally....the MRI was complete by 3pm.
Our doctor's appt was at 2pm. After the MRI..we headed upstairs to see the doc and surprisingly we got right in. He said that the ventricles are still mildly enlarged and that could still be because he was premature. He can see the floor of the aqueduct which he said is a good thing. He does not believe that we are dealing with hydrocephalus but would like to keep in eye on him for awhile. We will be following up with our pediatrician. We will just have to wait and see...watch for signs and symptoms.
Our next appt. will be at Wake for a urologist and plastic surgery in the next couple of weeks. We also have a genetics appt soon.
Please pray for the Williams family!
Pray for Stellan
Evan's Journey 1 lb 15 ozs and 12 1/2" at birth
About the boys
As of 3/31/08
Ryan is 4 1/2 years old. He is in preschool and loves every minute of it. He loves to color and he loves Larry Boy, the superhero from Veggie Tales.
Jack is almost 3 and he is the aggressive one. He likes to pick on his older brother. Even though he picks on Ryan, he likes to do whatever his big brother does.
Evan is 4 months old but is the size of an average newborn. He was born 9 weeks early. He was only 1 lb 15 ounces and 12 1/2 inches long at birth.
All of the boys have had their medical issues.
Ryan was diagnosed at birth with hydrocephalus. He was shunted at 3 days old. That shunt failed at about a year old. That is when the docs performed a third ventriculostomy. That failed one month later and was redone. His last surgery was January 2009 when he was 5. He has MRI's annually to make sure the hydrocephalus is under control.
Jack was diagnosed at 3 months old with hydrocephalus. He was shunted immediately but that shunt failed at 7 months old. They performed a third ventriculostomy and he has not had another surgery since. He has MRI's once a year.
Evan was born Intrauterine Growth Restricted(IUGR). He was born at 31 weeks 3 days gestational age. He was only 1 lb 15 ounces and he spent almost 2 months in the NICU.
Ryan is 4 1/2 years old. He is in preschool and loves every minute of it. He loves to color and he loves Larry Boy, the superhero from Veggie Tales.
Jack is almost 3 and he is the aggressive one. He likes to pick on his older brother. Even though he picks on Ryan, he likes to do whatever his big brother does.
Evan is 4 months old but is the size of an average newborn. He was born 9 weeks early. He was only 1 lb 15 ounces and 12 1/2 inches long at birth.
All of the boys have had their medical issues.
Ryan was diagnosed at birth with hydrocephalus. He was shunted at 3 days old. That shunt failed at about a year old. That is when the docs performed a third ventriculostomy. That failed one month later and was redone. His last surgery was January 2009 when he was 5. He has MRI's annually to make sure the hydrocephalus is under control.
Jack was diagnosed at 3 months old with hydrocephalus. He was shunted immediately but that shunt failed at 7 months old. They performed a third ventriculostomy and he has not had another surgery since. He has MRI's once a year.
Evan was born Intrauterine Growth Restricted(IUGR). He was born at 31 weeks 3 days gestational age. He was only 1 lb 15 ounces and he spent almost 2 months in the NICU.
RYAN
JACK
EVAN
|
Add this to your site |
Natalie George's Artwork
In Memory of Sweet Baby Tessa
No comments:
Post a Comment